Wellness and Survivorship Program
The Childhood, Adolescent and Young Adult Wellness and Survivorship Program consists of a multidisciplinary team focused on recognizing and managing potential late effects that can occur as a consequence after treatment for childhood cancers and/or following stem cell transplant.
Known and unknown effects of treatment can affect the brain, eyes, ears, lungs, heart, liver, gastrointestinal tract, kidneys, and bladder, as well as the skeletal, reproductive and endocrine systems. The program is focused on educating survivors regarding their long term health risks and addressing these needs by providing survivors with comprehensive medical and psychosocial care. Furthermore, the Wellness and Survivorship Program has the ability to utilize our experience with this unique patient population to develop and implement various clinical research projects that will contribute to the field of long term survivorship. Overall the program is equipped to design and deliver customized and personalized therapy for each long term survivor of their childhood cancer and/or stem cell transplant.
Key Contacts
Director
Jessica Hochberg, MD
Jessica.Hochberg@wmchealth.org
914.614.4270
Clinical Program Coordinator
Tara Giblin, MS, MPH, CPNP
Tara.Giblin@wmchealth.org
914.594.2179
Social Work
Rose Bartone, LCSW
Rose_Bartone@nymc.edu
914.594.2159
Clinical Trials
Services Provided
- Monitoring for and managing physical late effects
- Providing health education to survivors regarding their diagnoses, treatment exposures, and potential late effects
- Providing referrals to specialists and resources as indicated
- Encouraging wellness and health promotion activities
- Addressing psychosocial needs of survivors and affected family members
-
Assessing and providing intervention for educational and/or vocational needs
-
Assisting with financial and insurance issues
- Guiding transition from pediatric to adult focused healthcare
-
Empowering survivors to advocate for their own healthcare needs
- Facilitating survivorship research
Unique Features
Optimal healthcare delivery to this unique population requires the establishment of necessary infrastructure, including several key components:
- Longitudinal care utilizing a comprehensive multidisciplinary team approach
- Continuity, with a single healthcare provider coordinating needed services
- An emphasis on the whole person, with sensitivity to the cancer experience and its impact on the entire family
- Academic setting to allow for establishment of a specialized multidisciplinary follow-up team to care for large numbers of survivors
- Targeted individualized studies to evaluate organ function and monitor for late effects based on the survivor’s treatment history
-
Comprehensive psychosocial evaluation, guidance, and vocational assistance
Key Team Members/Disciplines
The core team will include a pediatric oncologist, nurse coordinator, social worker, data manager and clinical research associate. Surrounding the core survivorship team will be a group of physician specialists familiar with evaluating problems in childhood cancer survivors. Such specialties will include radiation oncology, cardiology, pulmonology, orthopaedics, neurology, endocrinology, urology, audiology/ENT, nephrology, gastroenterology, nutrition, dental and psychology. Team members include:
Director: Jessica Hochberg, MD
Clinical Program Coordinator: Tara Giblin, MS, MPH, CPNP
Radiation Oncology: Chitti Moorthy, MD
Cardiology: Deborah Friedman, MD
Pulmonology: Christy Kim, MD
Endocrinology: Richard Noto, MD
Nephrology: Robyn Matloff, MD
Orthopaedics: David Asprinio, MD
Neurology: Wendy Silver, MD
ENT/Audiology: Lynn De Serres, MD
Gastroenterology: Stewart Berezin, MD
Neuropsychology: Suzanne Braniecki, PhD
Social Work: Rose Bartone, LCSW-R
OB/GYN: Amy Vallerie, MD
Fertility: Matthew Lederman, MD with Reproductive Medicine Associates
Genetic Testing: Maryam Banikazemi, MD
Neuro-Ophthalmology: Scott Forman, MD
Camps
Sunrise Day Camp
Pearl River 600 Bear Ridge Rd.
Pleasantville, NY 10570
914.741.0333
Ages 3-16 day camp for children with cancer and their siblings
Learn More
Camp Sunshine
35 Acadia Rd.
Casco, ME 04015
207.655.3800
All ages. A unique program offering year-round programs for children with life-threatening illnesses and their immediate families.
Learn More
Camp Simcha
151 West 30th St.
New York, NY 10001
212.699.6661
Ages 6-21 in treatment or remission. Camp Simcha is a kosher facility.
Learn More
The Hole In The Wall Gang Camp
565 Ashford Center Road
Ashford, CT 06278
860.429.3444
Year-round center for children and their families coping with cancer, sickle cell anemia, and other serious illnesses.
Learn More
Double H Ranch
97 Hidden Valley Rd.
Lake Luzerne, NY 12846
518.696.5676
Ages 6-16. Camp and year-round activities
Learn More
Happiness Is Camping
2169 Grand Concourse
Bronx, NY 19453
718.295.3100
Ages 6-14. A traditional sleep-away camp for kids with cancer located in Blairstown, NJ
Learn More
KiDS NEED MoRE
P.O. Box 305
Copiague, NY 11726
631.608.3135
A nonprofit charitable organization dedicated to enhancing the lives of children, families and young adults coping with cancer and life-threatening illness.
Learn More
Camp Good Days & Special Times
1332 Pittsford-Mendon Rd.
Mendon, NY 14506
1.800.785.2135
All ages in treatment or in remission
Learn More
Asprinio, David
Chair of Orthopaedic Surgery, Orthopaedic Trauma, Orthopaedic Spine
Moorthy, Chitti
Emeritus Chair of Clinical Radiation Medicine
Attending Physician, Radiation Medicine
Endocrinology: Richard Noto, MD
Nephrology: Robyn Matloff, MD
Neurology: Wendy Silver, MD
Social Work: Rose Bartone, LCSW-R
OB/GYN: Amy Vallerie, MD
Fertility: Matthew Lederman, MD with Reproductive Medicine Associates
Neuro-Ophthalmology: Scott Forman, MD
,